You have real challenges, we have real solutions.
In today’s world, when it comes to autism-related care, questions abound.
Recently, I took about 30 minutes or so to go through all the different autism and autism-related support groups that I’m a part of on Facebook. And wow! You wouldn’t believe the number of questions that are asked on a daily, even hourly basis.
I see this is as both a good and a bad thing. On one hand, we have incredible networks of parents who are 1) open to asking their questions and 2) open to sharing their experiences and advice. On the other hand, there are innumerable parents and individuals who have questions that aren’t getting accurate or timely responses to their questions.
Okay, okay, so what does it all mean?
At myHana, this shows us that there is a massive disparity within the autism community. There are too many parents with too many questions that don’t have the support nor answers they need to address their challenges and concerns.
Here are a few of the questions I came across as I did my scroll through Facebook:
- Has anyone had success with ABA therapy?
- What should I be doing while we are on the waiting list?
- How can I help my child navigate disappointment?
- What does state-by-state coverage look like? Should we move?
- How do you deal with getting haircuts?
- What do you do for acne?
- While we wait to get a diagnosis, what should we be doing in the interim?
- Should we be applying for scholarships? If so, how and where?
- Which school should I send my child to? If we’re having problems, should we transfer?
- Why is my child angry and what can I do to help?
- Has anyone dealt with feeding disorders?
- Is there a better way to help my child process information?
Of these questions, some were more pressing than others, some were more proactive. For those of you reading, you may find these questions to be too simple or non-essential. Regardless, they are being asked and they represent the concerns and anxieties of millions of other parents and families.
More needs to be done. Clearly, the status quo is not cutting it.
What will we ever do?
Hopefully, if you’re following, you can see that we have our work cut out for us. This is a tall, tall order.
Our system, as it currently stands, is misaligned and fragmented. Don’t misunderstand me, there are thousands of gifted, well-intentioned people and organizations working incredibly hard to satisfy the needs of the autism community.
However, unless we consolidate our efforts and align our vision, helping parents create the secure and independent futures they want for their children will only get harder.
That is why myHana is striving to make care management easier, more comprehensive, and more affordable for those facing the challenges set before them.
Until then, we wish you the very best and invite you to connect with our team to get your child the help he or she needs.
The myHana Team